Public Advocacy Initiatives of
MCS Referral & Resources

Complaints & Critiques Advocating Scientific Integrity
in MCS Research, in MCS Conferences,
and in the U.S. Government's Response to Gulf War Syndrome

line

Advocating Integrity in MCS-Related Research

[A1] Complaint Concerning Paper by Drs. Simon, Daniell, Stockbridge, Claypoole and Rosenstock. Filed with the Federal Office of Research Integrity, the University of Washington Office of Scholarly Integrity, and the Annals of Internal Medicine.

Letters of complaint, followup, decision, and appeal regarding authors' decision to withhold critical data on immune test reproducibility from their paper on "Immunologic, psychological and neuropsychological factors in multiple chemical sensitivity: a controlled study" (Annals of Internal Medicine, July 1993, 119: 97-103). Filed by Donnay, April 1994. => $18

[A2] Second Complaint Concerning Paper by Drs. Simon, Daniell, Stockbridge, Claypoole and Rosenstock. Filed with the Federal Office of Research Integrity, the University of Washington Office of Scholarly Integrity, and the Annals of Internal Medicine.

Letter of complaint and followup regarding unexplained changes in raw data on pre-existing psychiatric conditions in same paper as above. Filed by Donnay, Nov.1994. => $5

[A3] Complaints Concerning Paper By Drs. Sparks, Daniell, Black, Kipen, Altman, Simon and Terr. Filed with the Journal of Occupational Medicine.

Two letters to the editor documenting misquoted and concocted references in a review paper by these authors entitled "Multiple Chemical Sensitivity Syndrome: A Clinical Perspective" (Journal of Occupational Medicine, July 1994, 36:718-737). Filed by Donnay & Matt Sweeting, August 1994. => $5

[A4] Complaint Concerning Draft "Review of Pertinent Medical & Scientific Knowledge Regarding Possible Exposure-Related Porphyrinopathies." Filed with WA State Department of Labor and Industries (L&I).

Detailed critique documenting numerous errors, omissions and the undisclosed conflict of interest of Dr. Labbe (see A5 below). Includes L&I draft). Filed by Donnay, Aug.1995. => $15

[A5] Complaint Concerning the Collection of Porphyrin Data from L&I Claimants Without their Informed Consent by Robert Labbe, Professor Emeritus at the University of Wash-ington. Filed with the UW Human Subjects Division and Office of Scholarly Integrity.

Letters of complaint and appeal regarding Dr. Labbe's use of a "Porphyrin Alert" form and other evidence documenting that he overrode physicians' orders and failed to obtain informed consent in collecting porphyrin data of use to L&I, for whom he was simultaneously drafting a policy on the handling of porphyria claims. Filed by Donnay starting Sept. 1995. => $10

Advocating Integrity in MCS-Related Conferences

[A6] Complaint Concerning Anti-MCS Bias of NIH Workshop on Persian Gulf Experience and Health [1994]. Filed with Health & Human Services' Secretary Donna Shalala.

Letter of complaint, NIH agenda (prior to revision), and U.S.A. Today article about agenda changes made as a result of this complaint. Filed by Ziem, April 1994 => $5

[A7] Complaint Concerning Anti-MCS Bias of "MCS: State of the Science Symposium" [1995] co-sponsored by the National Medical Advisory Service, International Society for Regulatory Toxicology and Pharmacology, and Johns Hopkins University/NIOSH Educa-tional Resource Center in Occupational Safety & Health.

Letters of complaint and followup to the conference organizing committee, sponsors, and continuing education authorities (includes original conference agenda). Filed by Donnay starting in August 1995. => $10

[A8] Complaints Concerning an MCS Work-shop sponsored by the International Program on Chemical Safety. Filed with IPCS, its US funding agencies, and posted on the Internet.

Letters of complaint and responses regarding the anti-MCS bias and lack of MCS experience among the workshop participants; the inappro-priate representaton of Non-Governmental Organizations by chemical industry employees; and the ongoing misrepresentation of the workshop's conclusions as official WHO policy (includes MCS Workshop statement and disclaimer later issued by WHO). Filed by Donnay starting in March 1996. =>$15

Advocating Integrity in the U.S. Government's Response to Gulf War Syndrome

[A9] Complaint Against Dr. Abba Terr Concerning Undisclosed Conflict of Interest. Filed with the Department of Veterans Affairs, the U.S. House Subcommittee on Oversight and Investigations and the President's Council on Integrity, and Efficiency.

Letters of complaint, response, and followup concerning Dr. Terr's failure to recuse himself from voting on a grant proposal with which he had a current conflict of interest, and the failure of the VA's Inspector General to thoroughly investigate allegations that Dr. Martin Albert, the head of the VA's Medical Research Service, lied to Congress to cover up this incident. Filed by Donnay and Ziem, May 1994. (Includes "Point & Counterpoint" listing some of Dr. Terr's corporate ties.) => $10

[A10] Complaint Concerning 10 Problems With VA/DoD Response to Persian Gulf Illness. Filed with Congressmen Evans, Kennedy, Browder and Sanders.

Report written in followup to a meeting with officials from the Depts. of Defense and Veterans Affairs on 12 May 1994, which was arranged and attended by these Congresspeople. Filed by Donnay and Ziem. Includes update given at U. Mass. Boston Symposium on Persian Gulf Syndrome, Nov.1994. => $10

[A11] Critique of the Department of Defense's "Comprehensive Clinical Evaluation Program for Gulf War Veterans, Preliminary Status Report on the First 1,000 Patients." Filed with DoD and various oversight committees.

Report, addendum and press release documenting Dept. of Defense effort to coverup true extent of undiagnosed illness in Persian Gulf Veterans (includes copy of December 1994 DoD Report). Filed by Donnay and Ziem, February 1995. => $10

[A12] Critique of the Department of Defense's "Comprehensive Clinical Evaluation Program for Gulf War Veterans, Report on 10,020 Participants, August 1995." Filed with DoD and various oversight committees.

Report documenting that unexplained illness is found in 41% of CCEP participants--not the 17% claimed--and other aspects of the continuing Dept. of Defense effort to cover up the true extent of illness in Persian Gulf Veterans (includes copy of August 1995 DoD Report). Filed by Donnay and Ziem, Aug 1995. => $15

[A13] Critique of Navy's Proposed Study of Seabee Gulf War Veterans. Filed with Navy Medical Corps Commander Gregory Gray and various oversight committees.

Report criticizes Navy for ignoring the Gulf War veterans' two highest ranking categories of illness (musculosketal and unexplained), ignoring civilian medical records, and asking questions about only a few of the 21 pesticides used in the Gulf (includes Navy's proposed questionnaire, study timeline, and list of collaborators and consultants). Filed by Donnay and Ziem, June 1996 => $15

line
Home button Referral button Resources button Links button Contact Us button


Last Modified: 10/23/06